Abstract

Scleroderma is a rare, painful and complex autoimmune connective tissue disease that can lead to death. The physiology of symptom onset and progression and the psychological aspects of living with this chronic disease have been studied fairly extensively. However, there is limited knowledge about scleroderma and negative physiological arousal (hyper-arousal: linked to immune dysfunction resulting in autoimmunity in the face of stressful events) and how levels of hyper-arousal are related to stress experienced at an early age; to emotion regulation coping strategies such as self-compassion; and to when scleroderma is experienced (earlier or later onset). Knowledge about these relationships may be important information for the treatment of scleroderma and related illnesses. This study addressed these relationships for scleroderma by examining how hyper-arousal was linked to these psychosocial experiences of stress, to coping strategies, and to age of disease onset.

A within group design was utilized. A total of 122 participants were recruited from Australia (39) the United Kingdom (81) and country not specified (2) and invited to complete an online or a hard copy survey. Lower positive early life experiences, lower levels of self-compassion and an earlier onset of disease were all related to elevated levels of hyper-arousal in individuals diagnosed with scleroderma. A regression equation showed all three contributed significantly to the experienced hyper-arousal. The findings suggest that greater self-compassion may be a determining factor in how earlier emotional experiences are managed and in predicting lower hyper-arousal in terms of this disease.

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