Perception of the Moral Development of the Child With Autoimmune Disease by Clinicians and Researchers

  •  Anderson Díaz-Pérez    
  •  Tahania Chona Rodríguez    
  •  Zoraima Romero Oñate    
  •  Arley Vega Ochoa    
  •  Carmenza Mendoza Cataño    
  •  Roiman Arenas Potes    


This article presents an analysis about meanings that clinicians and researchers have regarding the autonomy of the mature minor with autoimmune disease, which could lead to different power practices during the moment of taking the informed consent, keeping in mind the doctrine of the minor mature. Consequently, the role of clinicians and researchers in contributing to the moral development or autonomy of the child. The objective was to describe the meanings or perceptions of doctors and researchers, at the time of informed consent, in relation to the autonomy or moral development of the child with autoimmune disease, arising from their experiences, knowledge and prior conceptions of the child. The methodology used was of a qualitative nature with a subjectivist and interpretative approach and a transversal scope. Semi-structured interviews were applied to 21 people, researchers and doctors, who attend children with autoimmune diseases, whose data were analyzed through the Atlas Ti program. 8.0. In conclusion, the informed consent is a process of assertive communication ethical model that seeks the moral structuring of the child beyond what is perceived by the clinician or researcher, in addition the clinicians and researchers consider that to structure the minor is to perceive him as an autonomous subject; which is possible when it shows adherence to treatment and responsible care independently of the tutor's support.

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